Supporter stories /

Jo

Jo following her completion of 2018 London Marathon

Jo was 22 when a stroke changed her life forever. This happened without warning, whilst she was cycling in the Highlands.

Her stroke affected her ability to speak, to read and write, to communicate with her loved ones and to fully make sense of the world around her.

“For the first few weeks I didn’t understand what was going on. I think my family and friends found the first few days particularly traumatic.”

Jo spent the next three years rebuilding her life. She spent the first year having speech therapy so that she could fully communicate with those around her. However, a further blow came just six months into recovery, when she was diagnosed as suffering with post-traumatic stress as a result of the stroke.

In the following years, at a time when her friends were starting their careers, meeting new friends and living carefree lives, Jo was in and out of hospital and receiving counselling. Against all the odds, she returned to full-time work 14 months after her stroke and was given the “all clear” after three years.

Incredibly, she and her husband ran the London Marathon in 2018, raising £8,652 for Brain Research UK.  

Jo will never forget how her stroke changed her life nor the months of speech therapy and the years rebuilding her life.

Jo is a Physiotherapist and had been working in the NHS for 11 months before her stroke. She subsequently completed a Masters degree in Neurological Physiotherapy in Adult Neurology and now runs her own small independent practice helping others with neurological conditions regain or maintain their ability and independence.

“When you have a stroke, your world changes and you feel like it is at an end. I want to help encourage others with neurological conditions that their goals can still be achieved.”

This inspirational lady is also a qualified Pilates teacher. Jo’s main issues post-stroke were all related to speech, reading and writing; her muscle weakness and tone changes were more subtle as they didn’t restrict any normal sports or daily activity. She did however frequently experience neck and back pain, often resulting in time off work. Her physiotherapy colleagues diagnosed her muscular problems and recommended Pilates to strengthen and re-balance her body.

After the birth of her first child, Jo decided to try Pilates classes; after just the first class she had to adjust the mirrors in her car as it had made such a difference to her posture and body awareness. Before long she was attending three classes a week and her back and neck issues dramatically reduced in frequency and intensity; and she absolutely loved the discipline! Four years later, on returning to work after the birth of her second child, Jo decided to train to teach Pilates to help her own neurological patients in their recovery.

During the Covid-19 pandemic, Jo’s physiotherapy practice delivered Pilates classes live online and on 26th April 2020 Jo's 2.6 challenge involved nearly 40 participants practicing 26 Pilates exercises for 2.6 minutes each via Zoom, helping to raise additional funds for Brain Research UK.

Rebuilding lives through research

Whilst thankfully more people are surviving stroke than ever before, this means that an increasing number of people are living with the after-effects of stroke. There are an estimated 1.2 million stroke survivors in the UK today, two thirds of whom leave hospital with a disability.

The range of disabilities associated with stroke is greater than for any other condition and includes limb weakness, visual problems, and language and communication problems.

We are funding research to advance understanding of how to repair the damage caused by stroke, to facilitate recovery and improve the lives of those affected.

We funded PhD student Haya Akkad, whose research focused on improving recovery in patients who, like Jo, experience speech and language impairments after stroke. She used a form of non-invasive brain stimulation in combination with language training to boost recovery. Find out more about Haya's research and our other stroke projects

Find out more